kirsten
YaBB Newbies
I Love the 2ndWind Message Board
Posts: 3
|
Researching the experiences of a relative of a major organ transplant recipient.
To date there is little research on the experience of the transplantation process for the relatives of the recipient. This research focuses on the experience of relatives of people who have previously had a heart or lung transplant. If you agree to participate in this study, you will be asked to complete a questionnaire which will contribute to research in this important area.
The questionnaire is comprised of a series of questions. There are no right/wrong answers as I am interested in whatever you have to say about your experience of being a relative of a transplant recipient.
It is useful for this research if you can answer each question as fully as possible, taking time to think about your answer when needed, however if there are any questions you do not feel comfortable answering, you can just skip these and move on to the next question. The questionnaire will likely take 30-50 minutes to complete. Once you have completed the consent and questions below, please copy paste and email your answers to my address av001534@student.staffs.ac.uk
Other information that you need to be aware of is that,
1.To conceal your personal identity, all the data will be anonymised and your actual name will be replaced by a number. However a list of names and corresponding numbers will be kept for administration purposes in a secure place seperate from the completed questionnaire.
2.The names of any Transplant Units or any friend's or family will be removed and substituted to ensure anonymity.
3.Extracts from the questionnaires will be included in a project report which may be read by my project supervisor, external examiners and Staffordshire University students and staff. The project with anonymised extracts from interviews may be printed for publication where others not mentioned above will have access to the work.
4.You are taking part in this research voluntarily and have the right to withdraw at any time before, during or after the interview. No reason has to be given for your possible withdrawal, my contact details are below, if you contact me requesting so, your data will be erased up to 3 weeks after the questionnaire has been completed.
5.If you feel sensitive issues have been raised in the questionnaire and you want to seek support, you can contact the Samaritans on 08457 909090, or email the Samaritans at jo@samaritans.org
If you have any questions relating to the information above, the research questions or this research in general, please contact me at av001534@student.staffs.ac.uk.
Please type your name below if you have understood what is explained above and you are happy to take part in the interview:
Please delete* as appropriate 'I have/have not* read and understood the information provided on this study'
Signed ……………………… Date …………………
Thank you, now proceed to the questions…
Section A. Firstly some short factual questions:
Please indicate your relationship to the recipient, e.g. whether you are mother, father, sister, brother, spouse to the recipient.
What type of transplant did your relative receive?
How long ago did they receive the transplant?
How long were they on the waiting list before the transplant was received?
How many false alarms (prepped for transplant,organ not suitable) did you experience? :
Section B:
This section contains more detailed questions that focus on your experience of the transplant process. Please be as open and honest as you feel able and give as much detail as you can; to reassure you, remember that this questionnaire will remain anonymous.
Please use as much space as you need to answer these questions.
At what point and how, was the original idea of a transplant presented to you?
How did you feel about the transplant at the time?
If you had any false alarm’s before the actual transplantation took place, could you tell me a little more about them and how this was for you?
Did you feel supported through these occasions? How?
How did you feel in the days after those occasions?
When you heard the go ahead for the actual operation, what was that like?
What was it like for you during the operation?
How long was he/she in hospital after the event? How did you find that period?
What was it like when you were allowed to bring him/her home?
How have you found everything since then?
How has your life been since the transplant?
Do you still feel like you are caring for him/her?
How is your own health?
Do you feel as if you would benefit from some support of some kind?
Looking back at your experience as we have been, do you feel like you were well equipped/ prepared for the process?
Is there anything you can think of that would have helped you through the process as a whole or any specific stage?
Is there anything else that you would like to add regarding your experience as a relative of a transplant recipient? If so, what?
Thank you very much for your time and effort, it is much appreciated.
Kirsten Atherton.
|
Pages: 1
Caregiver's time for a bit of attention (Read 1331 times)
