Second Wind Lung Transplant Association Message Board

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Re-Transplantation? (Read 730 times)

SJHTx9

YaBB Newbies

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Posts: 2

Re-Transplantation?
01/11/10 at 3:08am

Hello, I am new to these forums and am trying to do some research on Lung Re-Transplantation and am not finding very much out there on the subject...

I had a double lung transplant (CF) in October of 2007 and have been in chronic rejection since March 2009. I'm trying to find out what the success rates are and what the risks involved are etc. If anyone has had a re-transplant I would love to hear from you or your stories if you know of others.

Thanks for your help.
Mitch

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kbloomer Junior Member Posts: 64 Gender:	Re: Re-Transplantation? Reply #1 - 01/11/10 at 9:17pm If there is no one here, check on transplantbuddies.org. I have seen a few people with profiles indicating they are awaiting or have had a retransplant. Good Luck, Keith B.
Back to top	Keith B. Bilateral Lung Transplant 11-12-08 Brigham and Womens Hospital IP Logged

SJHTx9 YaBB Newbies I Love the 2ndWind Message Board Posts: 2	Re: Re-Transplantation? Reply #2 - 01/12/10 at 4:06am Thanks Keith I will check it out. Take care.
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Cheryl

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Posts: 98

Re: Re-Transplantation?
Reply #3 - 01/12/10 at 11:51pm

Hi Mitch,

I'm glad you found our web site and message board. We have several members who have been retransplanted. As a matter of fact, one of our Board Officers has been retransplanted. I am going to send him an email and ask him to respond to your posting. His name is Garry Nichols and he is also one of our Peer Support Mentors. He has a great transplant story and I know he would be glad to share it with you. What transplant center do you go to? We certainly have lots of members who have experience with chronic rejection and the various treatments provided to halt or reverse the rejection. Let me know if your center has tried any of the treatments. I'll ask Garry to email you or post on the message board. I hope you are feeling some better.

Cheryl Keeler
Second Wind VP
Bilateral Lung Tx 02-03-05
Cleveland Clinic Ohio

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desparado YaBB Newbies I Love the 2ndWind Message Board Posts: 22 Gender:	Re: Re-Transplantation? Reply #4 - 02/04/10 at 9:29pm I herd of a woman on the effortslist.org sounds just like you think she made it 2 years then was re transplanted and now is 6 years out and doing fine. kind regards Walt S
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