Idiopathic Pulmonary Fibrosis (IPF)
Idiopathic Pulmonary Fibrosis, also known as pulmonary fibrosis, interstitial pulmonary fibrosis, interstitial lung disease, desquamative interstitial pneumonitis(DIP), or usual interstitial pneumonitis(UID) is one of the several lung diseases that often leads to the need for a lung transplantation. To assist you in learning more about this disease, we have listed the following links that deal with IPF.
| American Lung Association | This site gives an overview of the nature and known causes of interstitial lung disease as well as some of the treatments. Includes a glossary |
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This site has information about all aspects of dealing with interstitial lung disease and has an on-line forum |
| Coalition for Pulmonary Fibrosis Web site | |
| National Jewish Medical and Research Center | This site includes an overview of symptoms, and guidelines for managing interstitial lung disease |
| Dr. Gary Epler's IPF Home Page | Information for patients, their families and others who have questions about IPF or the Interstitial Pneumonias |
| Pulmonary Fibrosis Foundation | |
| Pulmonary Fibrosis Information | Includes an overview of the characteristics of pulmonary fibrosis, along with a personal account, and links to further resources. |
| Roger Steven's Guide | A complete guide from a patient's point of view of the symptoms and treatment of Idiopathic Pulmonary Fibrosis(IPF), Cryptogenic Fibrosing Alveolitis(CFA), including Living with Supplemental Oxygen, Tissue and Organ Donation and Lung Transplantation. |
| Virtual Hospital - Iowa Health Book | Walks you step-by-step through some of the experiences involved in the diagnosis and treatment of interstitial lung disease. |
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