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Second Wind Lung Transplant Association, Inc
Member Recommended Reading List
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A Patient's Guide to Transplantation
Author: John P. Butorac and Mary M. Palanchar
Publisher: American Transplant Association, Inc.
A Patient's Guide to Transplantation was developed for transplant patients by transplant patients. It was written to help guide you, the transplant patient, through the maze of this modern miracle of medicine known as organ transplantation.
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Breathing Better, Live in Wellness: Winning Your Battle Over
Shortness of Breath.
Author: Jane M. Martin
Publisher: Infinity Publishing, 2003
This book provides easy-to-understand and pleasant-to-read material for those diagnosed with a chronic lung disease - Emphysema,
COPD, Asthma, or other lung disorder. With short, easy-to-understand stories by and about people who have been diagnosed,
it offers education, support and encouragement. Read stories about people like you or your loved one who are successfully using
oxygen, stopping smoking, dealing with denial, participating in exercise, and acting as caregivers. There is hope for people with
lung disease! Whether you are a patient or a supporter, you will breathe better after reading this book.
Visit their website at: Breathing Better, Living Well
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Comfort and Be Comforted: Reflections for Caregivers
Author: Pat Samples
Publisher: ACTA Publications
Individuals caring for elderly, infirm, disabled or handicapped relatives or friends will find a wealth of wonderful,
comforting thoughts in over 100 single-page reflections. Suggestions for dealing with fatigue, anger, worry finances and
other practical matters are presented alongside meditations on themes of hope, patience, service, love and appreciation.
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Coping with COPD: Understanding, Treating, and Living with Chronic Obstructive Pulmonary Disease
Author: Elaine Fantle Shimberg
Publisher: St Martins Press
A clear, up-to-date guide to coping with Chronic Obstructive Pulmonary Disease, an insidious combination of chronic bronchitis
and emphysema with air-flow obstruction, explains how to quit smoking at any age, how to accomplish the everyday activities of
life, the benefits of oxygen therapy, nutritional needs, and other valuable tips.
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Coping with Prednisone
Author: E. Zukerman and J.R. Ingelfinger, M.D.
Publisher: New York: St. Martin's Griffin, 1998
Packed with everything your doctor didn't have time to tell you, including recipes, exercises, and tips based on
personal experience, "Coping with Prednisone "is an invaluable handbook for health-care workers, caregivers, and especially
for patients themselves.
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Everything ELSE You Always Wanted to Know About God (but were afraid to ask)
Author: Eric Metaxas
Publisher: Waterbrook Press, Oct 18, 2005, May 15, 2005 available for Pre-Order
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Exercise Program for Individuals with Lung Disease
Author: William F. Brechue, Ph.D.
Publisher: Second Wind Lung Transplant Association, Inc
Available for Sale on the Second Wind Web Site: Click here
An Exercise Program for Individuals with Lung Disease: Rationale and Programming. An excellent manual written by
Dr. William F Brechue with programs designed for those with lung disease. It has 70 spiral bound pages and includes:
Flexibility Program, Resistance Exercise Program, Machine Program, Dumbbell Program, Calisthenics Program, and Aerobic
Exercise Program.
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For Love of Life
Author: Laura Scott Ferris
Publisher: Send all Checks and Money Orders to: For Love of Life,
Attn: Book Order P.O. Box 261245. Lakewood, CO. 80226-9245,
During the first 25 years of her life, Laura J. Scott Ferris struggled for breath. The simple joy of breathing eluded her.
She was born with Cystic Fibrosis and doctors did not expect her to live beyond the age of five. Through the power of prayer,
faith, determination and medical breakthroughs her life expectancy was extended. At the age of 25 the doctors told Laura news
that would test not only her faith in God, but her will to survive: undergo a double-lung transplant, or die.
For Love of Life is the true story of a courageous young woman, and the man who dared to fall in love with her.
Laura’s courage will inspire anyone with a terminal illness to embrace life, and discover their own strength and courage to
live despite their illness.
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Grace Notes: Reflections on the Harp and Healing
Author: Tami Briggs, Therapeutic Harpist.
Publisher: Musical Reflections Press, June 2002
P.O. Box 62511, St. Louis Park, MN 55426. www.musicalreflections.com
The book is about Tami Briggs’ most profound and deeply spiritual experiences playing the harp at the hospital and hospice
bedside. The stories illustrate many dramatic accounts of using harp music as a mode of complementary care. The book tells of
poignant stories of the harps healing properties with several of the stories of lung and heart transplant patients.
Her several CDs are very comforting to listen to before and post transplant and as she say’s the greatest gift for her is
when a patient falls asleep. This book comes with the Grace Notes CD.
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Healing After Loss: Daily Meditations for Working Through Grief.
Author: Martha Whitmore Hickman
Publisher: Harpercollins Publishing
For those recovering from the death of a loved one, here is a collection of daily affirmations and meditations to ease the
grieving process and pave the way for healing to begin.
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Healthy Helpings Cookbook
Author: Second Wind Members
Publisher: Second Wind Lung Transplant Association, Inc
Available for Sale on the Second Wind Web Site: Click here
"Healthy Helpings" Cookbook. Please support a great cause and receive a great cookbook. Its got lots of delicious recipes
whether you are trying to eat healthy, gain weight for a transplant, lose weight post transplant or if you are a family member
that cooks for a transplant recipient pre or post. This book is very helpful in many ways.
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Kitchen Table Wisdom
Author: Rachel Naomi Remen, MD
Publisher: Riverhead Books, 1996
Kitchen Table Wisdom is a love letter to life. Funny, moving, and enlightening - these stories show us how to celebrate
our existence and remind us of the power and joy of being human. These real-life stories are drawn from the author's
35-year career as a physician and her personal experience as a patient. Their message is that, no matter how difficult
our experiences, we can only grow in wisdom and learn how to love better.
Recommended By: SHERRY DIMARSKY
Stories are everything: triumph, suffering, surviving, thriving... The author now works at Commonweal with cancer patients.
This book saved my life in many ways, especially as I was considering transplant and waiting for my lung.
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Living a Miracle
Author: Randy Sims
Publisher: WingSpan Press, September 2006
Imagine being told at the age of ten that you only had a few years to live. That's what doctors told Randy Sims in 1976.
This year he celebrated his 40th birthday. This gripping tale of triumph recounts how he overcame the fires of organ failure
and weathered the storms of life. Regardless of your personal situation, Randy offers hope and inspiration with practical
real-world advice on how to live YOUR miracle.
Recommended By: Tom Archer
Randy is a person of integrity and hope you meet once-in-a-lifetime. Living a Miracle is the story of Randy's as he lives with
a chronic lung disease. His bravery and courage lead his every step through a live filled with hospitals, pills, doctors,
nurses and pulmonary therapists. At every turn, with the encouragement of his parents, brother and wife, Randy takes the
high road motivated by his positive attitude and his deep faith. Living a Miracle is a must read. Run don't walk to your
nearest book store or on line book seller!
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Manual of Lung Transplant Medical Care
Author: Marshall I. Hertz
Publisher: Fairview Press, 2001
The manual describes the optimal procedures to follow in the care of the lung transplant patient -- beginning prior to the time
of first referral and continuing through the rest of the patient's post-operative life. This revised, 2nd edition includes
updated information related to living donor lobar transplants, as well as an expanded reference list.
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My Grandfather’s Blessings: Stories of Strength, Refule, and
Belonging
Author: Rachel Naomi Remen, M.D.
Publisher: Riverhead Books, 2000
Dr. Rachel Remen, author of KITCHEN TABLE WISDOM, remembers
her grandfather, a Kabbalah scholar, and the bits of wisdom that he
would impart to her as a child in the guise of blessings. His touching
words reaffirm that there is goodness in the world, if only people have the faith and patience to perceive it and to serve it.
Reviewed By: Damian Neuberger, Second Wind Board Member.
A wonderful collection of short stories that show strength, refuge and belonging, wisdom and leaves one wishing for more
stories that encourage and give hope where one would not see it at the beginning. It is a book that I keep and re-read to
find more kernels of wisdom and hope.
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Parenting Children
With Health Issues: Essential Tools, Tips, and Tactics for Raising Kids With
Chronic Illness, Medical Conditions, and Special Healthcare Needs. (Paperback)
Author: Foster W. Cline, MD, and Lisa Greene
Publisher: Love & Logic
By Foster W. Cline and Lisa C. Greene
This newest addition to Love and Logic’s library takes familiar and well-loved Love and Logic concepts to new heights. Dr. Cline, a well-known child psychiatrist, and Lisa Greene, the mother of two children with cystic fibrosis, have teamed up to provide parents and medical providers with a valuable new resource. Whether a child struggles with weight problems, diabetes, cancer or any other health issue, parents will learn the essential parenting skills they need to help their child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about health issues with children of all ages.
Reviewed By: Beverley Donelson, CF Pharmacy Florida
When I was asked to write about this book, I first asked, why me? I’m not a writer. I am just a grandmom to a child with a health issue – Cystic Fibrosis. I didn’t feel I could give it full justice for what it means to me. It is a very powerful book that not only provides all the ins and outs, nooks and crannies, why’s and why nots, what and what if’s to folks in this position. It dots all the I’s and crosses all the T’s.
There are many thoughts, concerns, needs and challenges for these families – I know! I have heard them and even had some myself. People used to refer to Dr. Spock’s books as the 1st aid book for babies. Well, “Parenting Children with Health Issues” far exceeds that, and it simply does it all! I said before, after critiquing it in its development stage, it’s better than anything I’ve ever read for parenting and special children. We need this.
Having worked as a teacher 20+ years and then working with many families in the Cystic Fibrosis Community and having five children and ten grandchildren, I would say I have been “exposed” to many families that this book will provide insight to and help them daily.
I feel this book goes much further than just helping families. It will become a tool of choice for many professionals who work with these families to help guide them to a much happier and healthier life.
I agree with Dr. King when he said “a few books fall into the Great Work category. This is one of them.”
Thank you Dr. Cline and Lisa Greene and all the folks who helped Love and Logic give us “Parenting Children with Health Issues.”
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Patient To Provider: A Patient's Guide To Transplantation
Author: Jeffrey W. Young, Jr. MSN FNP APN-BC
Publisher: Author House
In language, both instructive and clear, Jeff deftly simplifies the concepts of organ failure and transplantation. He speaks that greatest of all languages, the language of the heart, and the reader cannot help but be deeply motivated and inspired.
The book’s dual perspectives of Jeff’s personal experiences, both as a patient and a health care provider provide the reader with a sound foundation for dealing with that moment in life when a patient is told he/she is no longer NORMAL. Here Jeff has masterfully found the balance between clarity and depth.
The final section in which public statements from transplant recipients give a name and face to the many patients helped by live and deceased donor transplantation, is truly inspirational.
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Preparing for Surgery, Heal Faster: A Guide of Mind-Body Technique
Author: Peggy Huddleston
Publisher: Angel River Press (April 1, 2002)
This book and audio tape helps to calm pre-operative jitters and create the bio-chemistry that enhances healing. It can also
be used for deep relaxation to reduce stress. If you’re having surgery, you’ll want to use the Relaxation/Healing tape and read
the book one or two weeks before your operation. The Prepare for Surgery, Heal Faster program is offered by leading hospitals
across the US including NYU Medical Center in New York and several Kaiser Permanente Hospitals in California.
Reviewed By: Joy Williamson
This is the book I found so very useful prior to my transplant, and I hope you enjoy it too.
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Share the Care: How to Organize a Group to Care for
Someone Who Is Seriously Ill.
Author: C. Capossela & S. Warnock
Publisher: Simon & Schuster, September 1995
Included here are valuable guidelines, compassionate suggestions, and a simple-to-use workbook section that together offer
support to free the patient from worry and the caregivers from burnout. Share The Care presents a unique group approach that
can turn a circle of ordinary people into a powerful care giving team. "Share The Care" offers friends and family the best
answer ever to the frequently asked question "What can I do?"
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Shortness of Breath: A Guide to Better Living and Breathing
Author: Andrew Ries and Catherine A. Larsen
Publisher: Elsevier Science Health Science Division
A Guide to Better Living and Breathing has been a helpful tool for educating patients about chronic lung disease, specifically
chronic obstructive pulmonary disease. This user-friendly book presents a wealth of pertinent information in a style the
average reader can comprehend. "Shortness of Breath" covers the psychological and physiological impacts of lung disease, offering
suggestions on exercise programs, relaxation techniques, travel precautions, diet, and more.
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Sick Girl Speaks!
Lessons and Ponderings Along the Road to Acceptance
Author: Tiffany Christensen
Publisher:
"I was born with cystic fibrosis and have undergone two double lung
transplant surgeries. Despite that, this is not a book about transplant
or CF. In my travels, I’ve had the opportunity to interact with many
patients with a wide variety of diagnoses. While we may have been on
different medications, had different surgeries or experienced different
symptoms, the emotional, spiritual and psychological effects were often
nearly identical.
I was inspired to write this book after a conversation with a friend who
came to visit me one summer. Her father had just had a stroke and was
in the hospital. She told stories filled with fear and sadness because
she was so lost in the medical maze while desperately trying to take
good care of her dad. I was overwhelmed with the desire to share with
her all that I had learned through the years of stumbling through my
own illness maze."
-Excerpt from Sick Girl Speaks!
Reviewed By: Kathryn Flynn
Tiffany Christensen, like many adults with cystic fibrosis, has lived with the knowledge that her life span will be limited. Medical advances have extended her life far beyond the eight years predicted at her birth. Now in her thirties, with two double-lung transplants behind her, Tiffany has chosen to share a journey that has led her to clarity and acceptance.
Tiffany’s book is a collection of essays separated into two themes: the medical maze and the emotional maze. As she navigates the health system she shares the lessons she has learned as a patient. The subtitle of this book, “Lessons and Ponderings Along the Road to Acceptance” describe the nature of this book- life is immediate experience but wisdom and insight occur as we reflect on our past and our beliefs. Rather than taking a linear trip through her life story, Tiffany meanders like a country road drawing on her life experience to share lessons learned.
Being chronically ill and facing death twice (so far) does not guarantee that life lessons will be learned or imparted. A life examined, however, is valuable when shared with others. Tiffany shares her rebellions, her fears, her tears, her humor and her mounting strength as she becomes her own advocate and comes to an awareness of her spiritual belief. She shares her life without self-pity.
One of my favorite sections, Tiffany’s Top Ten Opportunities of Illness has opened my eyes as I navigate my post-transplant years. I never took advantage of the opportunity to say goodbye to those I love and I am still working on what I think about God and resolving differences with loved ones. This is only one of the life lessons shared that makes the reader want to delve deeper and examine how much can be learned by examining your life with honesty and humor.
In order to inform patients and professional caregivers, Tiffany has become a public speaker and illness coach. Her website www.sickgirlspeaks.com has information about her speaking schedule, podcasts, videos, workshops, private coaching for patients and families and this book also available in the Second Wind bookstore (http://www.2ndwind.org/store/index.html).
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The Breathing Disorders Sourcebook
Author: F.V. Adams, M.D.
Publisher: Lowell House, November 1998
The Breathing Disorders Sourcebook is an extensive guide to the causes, symptoms, and treatments for different types of
breathing disorders. It explores the normal mechanisms involved in the act of breathing as well as what can go wrong and
describes what to expect during the medical evaluation.
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The Gift of Peace, Personal Reflections
Author: Joseph Cardinal Bernardin
Publisher: Loyola Press, 3441 North Ashland Avenue,
Chicago, IL 60657 Tel: 800-621-1008.
In the final two months of his life, Joseph Cardinal Bernardin made it his mission to share his personal reflections and
insights following a false accusation of sexual misconduct, diagnosis of cancer and the return of cancer after a 15 month
remission. At the end of the story he tells of his peace as a gift from God and he shares that with all of us. The book is
not particularly Catholic although mentions of the Church and staff are presented but only as that is the world in which he is
living.
Reviewed By: Damian Neuberger, Second Wind Board Member
I am not Catholic but found the book a wonderful read, short, easy, full of wisdom and did not find it in anyway theologically
differing from my own faith. I have found to be a true gift. When I was being evaluated by Barnes, having completed 3 days of
intense testing and on the fourth day, November 14th, 1996, my birthday, I was to find out if I would be listed. I awoke to
the motel clock radio to the news that he had died from his pancreatic cancer. Somehow I suddenly knew that he had gone ahead to
plead my case although I had never met him. Upon meeting the Medical Director, I was turned down but after showing out some old
blood tests and a letter from Mayo clinic, I was accepted.
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The Lung Transplantation Handbook: Guide for Patients,
Second Edition
Author: Karen Coulture
Publisher: Trafford Publishing, 2001
The Lung Transplantation Handbook (Second Edition): A Guide For Patients This comprehensive, 270-page book, written by
lung transplant recipient and Second Wind member Karen A. Couture, covers the entire transplantation process from beginning
to end for both lung and heart-lung transplants.
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The Official Patient's Source Book on Idiopathic Pulmonary Fibrosis
Author: J.N. Parker & P. Parker
Publisher: ICON Health Publications, June 2002
This book has been created for patients who have decided to make education and research an integral part of the treatment
process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients
where and how to look for information covering virtually all topics related to idiopathic pulmonary fibrosis.
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The Spirit of Lo
Author: Terry and Don Detrich
Publisher: Mind Matters, Inc. September of 2000
An Ordinary Family's Extraordinary Journey: Life's dance on the edge of Mortality. An ordinary family is faced with an
extraordinary challenge, a child with cystic fibrosis. This is their story, rich and moving, as they laugh and cry and learn
and grow. Their love, faith and commitment to each other carry them through battles with depression, anger, despair, and the
ravages of the disease as they join a race with death for a cure. What emerges is The Spirit of Lo, which enables the family
and their community to face each new day of life's dance on the edge of mortality.
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Transplant Teddies: Our artistic journey through lung transplantation
Compiled By: Yvonne Sledge
Publisher: Barnes-Jewish Hospital
We have captured here, a moment in time. The status or our transplant patients is subject to change. By the time this book
is published, our patients that are waiting may have actually been transplanted.
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To purchase the books available in our store web page, please go to our store web page by clicking here
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