|
National We've Been There National Transplant Organization 2727 29th St. NW Suite 115 Washington, DC 20008 Location: We'll visit you wherever you live Contact: Mr. Yoav Gilad Phone: 1-866-938-3233 Email: ygilad@wevbeenthere.org Website: Click Here Details: 10-35 year olds Eastern Canada Eastern Canada PO Box 38 Maccan NS B0L1BO Location: My Place Contact: Brad Phone: 1-902545-2140/fax 1-902545-2128 Email: nswildcat1@hotmail.com Alabama Organ Transplants of Alabama P.O. Box 263 Slocomb, AL 36375 Contact: Annette McCollough Phone: (205) 886-2825 Details: Open to All Second Chance Support Group Huntsville, Alabama Contact: Ed Collier Phone: 256-837-9575 Southeast Transplant Organization President: Margarette Ellis Phone: (334) 692-3451 Email: DothanSETO@aol.com Southwest Transplant Support Group University of Alabama 820 University Blvd., #4-F Mobile, AL 36609 Contact: Beth Hagler Phone: (205) 460-0800 Details: Open to All TRIO Alabama 1900 Waverly Parkway Opelika, AL 36801 Contact: Carol Letlow Phone: (334) 749-2862 Details: Open to All UAB Heart and Lung Transplant Support Group University of Alabama - Birmingham P.O. Box 531274 Birmingham, AL 35253 Contact: Tom Horton Phone: (205) 967-7350 Alaska TRIO Alaska (a chapter of TRIO) Alaska Kidney Center 7231 Kifka Circle Anchorage, AK 99504 Contact: 907-653-3149 x13 Details: Open to All Arizona Arizona Heart Heart/Lung Transplant Fund Tucson Community Foundation 6601 East Grant Rd. Ste. 111 Tucson, AZ 85715 Contacts: Carol Stack/Donna Grant Phone: 602-722-1707 Details: Heart Heart/Lung Arizona Heart/Lung Transplant Fund University Medical Center P.O. Box 102 Sonoita, AZ 85637 Contact: Kaia J. Barnhill Details: Heart Heart/Lung TRIO Central Arizona ( a chapter of TRIO) P.O. Box 83442 Phoenix, AZ 85071-3442 Contact: Vikki McInnis Phone: (602) 971-3335 Details: Open to All Arkansas Organ Recipients Association of Arkansas Location: Meets First Saturday of each Month at 10:30am Gilbreath Conference Center Baptist Medical Center Contact: Dick Wyatt Phone: (501) 837-7375 Email: rhwyatt@comcast.net California Transplant Support Group UCLA Medical Center 10833 LaConte Ave. Los Angeles, CA 90024 Contact: Sharon Zelin L.C.S.W. Phone: 310-825-6024 Details: Heart/Lung Lung Transplant Support Group Cedars-Sinai Medical Center Medical Social Work 8700 Beverly Blvd. Rm. 4520 Los Angeles, CA 90048 Contact: Marcia Penido LCSW Phone: (310) 855-4446 Details: Pre and Post-Lung Transplant Patient/Family Support Group Sharp Memorial Hospital 7901 Frost St. San Diego, CA 92123 Contact: Linda Hutkin-Slade Phone: (619) 541-3393 Details: Heart Heart/Lung Lung San Diego Transplant Association (SDTA) 625 Broadway, Suite 815 San Diego, CA 92101 Phone: (619) 687-0247 Fax: (619) 687-0247 Details: Open to All TRIO Los Angeles (a chapter of TRIO) P.O. Box 24797 Los Angeles, CA 90024-0797 Contact: Tina Haramis Phone: (213) 486-4567 Details: Open to All TRIO Orange County (a chapter of TRIO) 2720 N. Gaff Street Orange, CA 92665 Contact: Diane Barilone Phone: (714) 637-3034 Details: Open to All TRIO San Francisco Bay Area (a chapter of TRIO) PO Box 160154 Cupertino, CA 95016-0154 Cotnact: Jeff Groteboer Phone: (408) 496-2726 Details: Open to All UCSD Heart/Lung Transplant Support Group University of California San Diego Medical Center 200 West Arbor Dr. San Diego, CA 92103-8918 Contact: Mercedes Garcia-Mohr LCSW Phone: (619) 543-5730 Details: Heart/Lung The Varsity - For Patients and Family 18 Months+ Post-Transplant Sharp Memorial Hospital 7901 Frost St. San Diego, CA 92123 Contact: Linda Hutkin-Slade Phone: (619) 541-3393 Details: Heart Heart/Lung Lung Heart/Lung Transplant Support Group USC-University Hospital 1500 San Pablo Los Angeles, CA 90033 When: First Tuesday of every month at 6:30 pm Contact: Annalisa VanKirk Phone: 323 442-8419 Email: akirk@surgery.use.edu Details: Pre- and Post- Lung Transplant Patients and their families and/or friends Heart/Lung Pediatric Transplant Group Children's Hospital Los Angeles 4650 Sunset Boulevard Los Angeles, CA 90027 Contact: Dorothy Rocha L.C.S.W. Phone: 213-669-4148 Details: Pre- and Post-pediatric transplant patients families siblings Colorado Lung and Heart Transplant Support Group University Hospital 4200 East 9th Ave. Campus Box C300 Denver, CO 80262 Contact: Val Stepien MSW Phone: (303) 270-7477 Details: Lung/Heart Rocky Mountain TRIO (a chapter of TRIO) 221 South Garfield #103 Denver CO 80209 Contact: Carol Groves-Harris Phone: (303) 388-2092 Details: Open to All Second Chance Singles Porter Carc. Hospital 2535 South Downing Ste. 380 Denver, CO 80210 Contact: Gretchen Hansen, ACSW Phone: (303) 778-5797 Details: A singles social/activity group for adult unmarried transplant recipients The Lung Connection 4590 W. Mineral Drive #1514 Littleton, CO 80128 Contact: Susan Hamelin Phone: (303) 730-8545 Details: A comprehensive resource for housing and support for families going through the transplant process, both before and after surgery. Connecticuit Cardiopulmonary Support Group Yale-New Haven Hospital 20 York St. Rm. NF5-437 New Haven, CT 06504 Contact: Jim Schomburg Phone: (203) 785-3922 Details: Heart/Lung Transplant Support Group Yale-New Haven Hospital MU 9-810 20 York St. New Haven, CT 06405 Contact: Jacqueline L. Wilson MS CISW Phone: (203) 737-2305 Details: Lung Kidney Pancreas Delaware Dover Transplant Support Group Barbara Richardson, RN 1679 So. State St. Box B-5 Dover, DE 19901 Contact: Barbara Richardson, RN Phone: (302) 678-8965 Details: Meets monthly, please call for dates and locations. Hearts from Heaven Transplant Support Group Mr. Bob Barclay 1207 Carr Rd. Wilmington, DE 19809 Contat: Mr. Bob Barclay Phone: (302) 798-5847 Details: Please call for meeting dates and locations. Living Donor Support Group Washington Hospital Center 110 Irving St. NW Washington, DC 20010 Contact: Zarita Smith, MSN Phone: (202) 877-6058 Details: Living Donors Nation's Capital Area TRIO (a chapter of TRIO) P.O. Box 7633 Arlington, VA 22207 Contact: Jane Leon Phone: (703) 920-8746 Details: open to all Florida N.O.T.E. National Organization for Transplant Enlightenment 3780 Tampa Road Oldsmar, Fl 34627 When: Meets every third Friday 11:00am at Mease Room at Countryside Mall Contact: Les Valitutti Phone: (813) 891-9559 Email: Lvalitutti@aol.com Details: Open to All Transplants Broward/Palm Beach Transplant Support Group Transplant Care Center 2201 W Sample Road Building 9, Suite 3B Pompano Beach, FL When: Meets on the 3rd Thursday of each Month 7:00 p.m. Contact: John Venezia Contact: 954-956-5675 Sponsored by: The Transplant Foundation, Inc. 1801 NW 9th Avenue, Suite 150B Miami, FL 33136 Details: Open to All Have a Heart Transplant Support Group Broward General Hospital Bertram Steiner P.O. Box 8368 Coral Springs, FL 33075 When: Meets on the 3rd Wednesday of each Month 6:45 p.m. Contact: Bertram Steiner Phone: 305-755-0666 Details: Open to Heart and Lung New Life Support Group Florida Hospital Medical Center 601 E. Rowlins Street Orlando, FL 32804 When: Meets on the 3rd Thursday of each month at 7:00 p.m. Contact: Eileen O'Kennedy, transplant social worker at TransLife Phone: (800) 443-6667 ext 3627 or (407) 303-3627 Email: eileen.okennedy@translife.org Details: Kidney, but open to all Tampa Second Wind Support Group Perkins Restaurant North Dale Mabry & Stall Road Tampa, FL When: Meets on the 3rd Saturday of each month from 5:30 - 7:00 p.m. Contact: Janet Walin Email: majaw@sprintmail.comg -or- Contact: Paul Brooks Phone: (813) 949-7561 Email: lungs57@aol.com Details: Open to Anyone with Breathing Problems Land-O-Lakes Second Wind Support Group (informal) ABC Pizzaria U.S. 41 Land-O-Lakes, FL When: Meets on the last Wednesday of each month at 12:30 p.m. Contact: Paul Brooks Phone: (813) 949-7561 Email: lungs57@aol.com Details: Open to Anyone with Breathing Problems TRIO North East Florida (a chapter of TRIO) St. Luke's Hospital Roger Main Building, Room 370 Jacksonville, FL When: Meets on the 3rd Thursday of each month in the at 7:00 p.m. Contact: J.T. Rhodes Phone: (904) 296-9055 Details: Open to All New Life Shands Hospital University of Florida UF room 11-404 (the MICU conference room) Gainesville, FL When: Meets on the Every Wednesday (except for holidays) of each month from 5:00 - 6:00 p.m. Contact: Abigail Wilson Phone: 352-265-0111 ext. 44090 Email: maeabigail@hotmail.com Open to patients and caregivers of pre and post transplant patients Georgia Second Wind Lung Transplant Association Georgia Support Group 3527 Pebble Beach Drive Augusta, GA When: Meetings held at Emory University Hospital Cafeteria in Atlanta, GA Contact: (Augusta) Bob Hudson Phone: (706) 863-8172 Email: rhudson696@aol.com Contact: (Atlanta) Mary Smith Phone: ( 770) 649-9785 Contact: (Savannah) Bette Rovolis Phone: (912) 354-6455 Details: Lung transplant patients Illinois 2nd Chance - The Organ Transplant and Donor Support Group Where: Blessing Hospital 11th Street Quincy, Il Contact: Ray Simmons Phone: (217) 223-3184 day; (217) 224-5192 evening Indiana Heart and Lung Transplant Support Group Lutheran Hospital of Indiana 7950 West Jefferson Blvd. Fort Wayne, IN 46804 Contact: Kari Troxel, ACSW, CCSW Phone: (219) 435-7047 Details: Heart Lung Heart/Lung Michiana Organ Transplant Support Group 56155 Harman Dr. Mishawaka, IN 46544 Contact: Bea Schroeder Phone: (219) 255-4553 Details: Open to All Peer Support Group Lutheran Hospital of Indiana 7950 West Jefferson Blvd. Fort Wayne, IN 46804 Contact: Kari Troxel, ACSW, CCSW Phone: (219) 435-7047 Details: Heart Lung Heart/Lung Spouse Support Group Lutheran Hospital of Indiana 7950 West Jefferson Blvd. Fort Wayne, IN 46804 Contact: Kari Troxel, ACSW, CCSW Phone: (219) 435-7047 Details: Heart Lung Heart/Lung Transplant Support Group Methodist Hospital of Indiana I-65 at 21st St. Indianapolis, IN 46206-1367 Stephny Huguenard, BSW Phone: (317) 929-8677 Details: Heart Lung Liver (Pre- and Post-Transplant) Iowa Anxiously Awaiting a Second Chance at Life University of Iowa Hospital & Clinic 1620 JCP - UIHC Iowa City, IA 52242 Contact: Sara Vance Phone: (319) 356-4807 Details: Open To All Life from Life Mid-Iowa Transplant Support Group, Des Moines 5924 Aspen Circle Johnston, IA 50131 Contact: Stuart Johnsrud Phone: 515-270-1227 Open to All Recipient Donor Network Mary Grelley Medical Center 117-11th St. Ames, IA 50010 Phone: (515) 292-0952 Details: Open to All Transplant Support Group Marian Health Center 4620 Filmore Sioux City, IA 51108 Contact: Diana Reeser Phone: (712) 239-4075/(712) 255-2324 Details: Open to All Kansas Organ/Tissue Transplant Support Group 3518 Bellaire Wichita, KS 67218 Contact: Glenda Jespersen Phone: (316) 684-5074/(316) 685-5699 Details: Open to All Kentucky Heart/Lung Transplant Support Group Jewish Hospital 217 East Chestnut Street Louisville, KY 40202 When/Where: Meets on first Wednesday of Jan / Mar / May / July / Sep / Nov; 2:00 - 3:30 pm Where: Transplant Conference Room Contact: Janet Forsythe, ACSW, CSW Phone: (502) 587-4448 or (501) 587-6384 Deetails: Heart Lung or Heart/Lung (Pre and Post-Transplant) Transplant Support Group Audubon Regional Medical Center One Audubon Plaza Dr. Louisville, KY 40217 Contact: Carolyn Nicholson, RN Phone: (502) 636-7135 Details: Open to All TRIO Kentuckiana/Louisville (a chapter of TRIO) 4223 New Hopewell Rd. Louisville, KY 40299 Contact: Pat Sammons Phone: (502) 267-5495 Details: Open to All TRIO Second Chance (a chapter of TRIO) 718 Seminole Drive Madison, KY 42431 Contact: Charlotte Stuart Phone: (502) 821-1847 Details: Open to All University of Kentucky Support Group 800 Rose St. H-149 Department of Social Services Lexington, KY 40536 Contact: Joni Johnson Phone: (602) 323-8004 Details: Heart, Lung Louisiana Northeast Louisiana Transplant Support Group c/o Barbara Weemsv P.O. Box 1 Delhi, LA 71232 Contact: Barbara Weems Phone: (318) 878-2754 -or- Contact: Pat Inman Phone: (318) 396-6147 Details: Open to All Ochsner Transplant Center 1514 Jefferson Highway New Orleans, LA 70121 Contact: Social Worker Phone: (504) 838-3925 Cardiac, Lung, Liver Maine TRIO New England (a chapter of TRIO) 172 Boston St. Middleton, MA 01949 Contact: Marty Smith, Director Phone: (508) 777-6050 Fax: (508) 777-0620 Details: Open to All Maryland Heart Transplant Foundation Inc. P.O. Box 144 Riva, MD 21140-0144 Contact: Richard Finlay Phone: (410) 647-8979 Details: Heart Heart/Lung Nation's Capital Area TRIO (a chapter of TRIO) P.O. Box 7633 Arlington, VA 22207 Contact: Jane Leon Phone: (703) 920-8746 Open to All On T.R.A.C. - Transplant Recipients Are Coping University of Maryland Medical System Section of Transplantation 22 South Greene St. Ste. 200 Baltimore, MD 21201 Contact: Nancy Thompson, MSW Phone: (410) 328-5408 Details: Open to All Pediatric Transplant Parents Association John's Hopkins Hospital P.O. Box 418 Churchton, MD 20733 Contact: Carol Bryon Phone: (410) 614-2714 Details: Open to All (Mostly Liver and Kidney) TRIO Eastern Shore (a chapter of TRIO) P.O. Box 43 Easton, MD 21601 Contact: Jim Hundertmark Phone: (410) 820-1361 Details: Open to All TRIO Greater Baltimore (a chapter of TRIO) 3 E. Madison Street Baltimore, MD 21202 Contact: Pat Lebowitz Phone: (410) 547-8947 Details: Open to All Massachusetts Brigham & Women's Lung Transplant Support Group Where: Conference Room B & C of Thorne Building, 1st Floor Whem: 3rd Wednesday of each month Cntact: Quonekuia Day SW Phone: (617) 732-5500 Ext. 32819 Email: QDay@partners.org Details: Pre & Post Transplant and Support Persons Lung Transplant Support Group Massachusetts General Hospital ACC - 626 Fruit St. Boston, MA 02114 Contact: Susan Zorb, RN, MSN, ANP Phone: (800) 876-LUNG Details: Lung Michigan Jackson Transplant Support Group Pulmonary Rehab Foote Hospital 1100 East Michigan, Suite 102 Jackson, MI 49201 When: 2nd Saturday of month, 10:30 to 12:30 Where: Foote Hospital 1100 East Michigan, Suite 102 Jackson, MI 49201 Contact: Cathy McAllister, MSW, ACSW Phone: (517) 788-4908 Details: Pre and post transplant, caregiver/support persons Second Chance Transplant Support Group St. John Macomb Hospital 11800 E. Twelve Mile Warren, MI When: 3rd Tuesday of each month Contact: Pam Hill Phone: 586-756-7274 Email: pjh1lung@aol.com< Details: Pre/Post Transplants and families Acts II: Grand Rapids Transplant Support Group When: Meets every 3rd Tuesday; 7 - 9pm Where: alternates between Blodgett and Butterworth Hospitals (call for location) Contact: Liz Frederickson, RN Phone: (616) 774-7671 Flint Transplant Support Group Meets 2nd Saturdays 2-4pm St. Joseph Hospital Where: Administration Bldg., 4th floor conference room Contact: Jim and Shirley Teffner -or- Contact: Jerry and Colleen McDaniels Phone: (313) 733-1758 Henry Ford Hospital Lung Transplant Support Group; Detroit, MI. When: Meets the 3rd Wednesday of each month 1pm Where: Berkey Auditorium Contact: Kathy Klostermanv Phone: (313) 876-2689 Lakeshore Transplant Support Group Muskegon, MI. When: Meets the 2nd Wednesday of each month 7pm Where: Hackley Hospital; Muskegon, MI. Contact: C.J. or Pat Raugh Phone: (616) 744-2397 Details: All transplant patients, their families and donor families LOTS (Lansing Organ Transplant Support Group) 10544 Telephone Network Contact: John Brinkerhuff 10544 Twain St. Dimondale, MI 48821 Phone: (517) 646-6331 Details: ( Open to all Pre- and Post Transplant Recipients ) L.O.T.T.S. TRIO (a chapter of TRIO) P.O. Box 1424 Portage, MI 49081-1424 Contact: Jan Getz Phone: (616) 349-6630 Details: Open to All LOTTS ( Living Organ and Tissue Support Group ) Kalamazoo, MI. When: Meets the 2nd Tuesday of each month 7 - 8:30 pm Contact: Jan Getz Phone: 616-349-66330 -or- Contact: Bill or Pat Johnson Phone: (616) 679-5757 Details: Open to all transplant patients pre/ post and their families Michigan Transplant Group 350 North Hagadorn South Lyons, MI 48178 Contact: (810) 486-3180 or (810) 486-3059 Details: Open to All New Life, Monroe When: First Tuesday of each month 7:30pm Where: Mercy Memorial Hospital Monroe, MI Contact: Andy Alston Phone: (313) 586-2410 Email: andy@tdi.net -or- Contact: Nancy Bunch Phone: (313) 281-3523 Organ Transplants of Southwest Michigan, ( A chapter of T.R.I.O. ) Benton Harbor/ St. Josephs. MI When: Meets the 3rd Tuesday of each month 7pm Where: Whitcomb Towersv 509 Ship St. St. Josephs, MI. Contact: Gary Rouse, President c/o P.O. Box 8786 Benton Harbor, MI 49023 Phone: (616) 423-6450 Fax: (616)-423-7024 Details: Open to all, including the public Owosso Transplant Support Group When: Meets every 3rd Tuesday 7pm Where: Owosso Memorial Health Care Center, executive dining room Contact: Buddie Stroub Phone: (517) 743-4863 Second Chance Macomb Center Hospital When: Meets the 1st and 3rd Tuesday of each month 7 - 9pm Where: Macomb Center Hospital 12 Mile and Hoover Warren, MI Contact: Pam Hill Phone: (810) 756-7274 Second Time Around, Grand Rapids, MI. When: Meets the 3rd Monday of each month 7 - 9 pm Alternates between Blodgett and Butterworth Hospitals ( call for location ) Contact: Coordinator Jacquie Oliai Phone: (616) 774-7641 Details: Open to all pre- and post transplants and their families Shiawassee County Are T.I.M.E. (Transplant in Motion Everywhere) Owosso, MI When: Meets every 3rd Tuesday 7pm Where: Owosso Memorial Health Care Center, executive dining room Contact: Buddie Stroub Phone: (517) 743-4863 Southwestern Michigan TRIO (a chapter of TRIO) 56630 89th Avenue Lot 10 Decatur, MI 49045 Contact: Gary Rouse Phone: (616) 423-6450 Details: Open to All University of Michigan Medical Center Lung Transplant Support Group When: Meets 4th Saturday of each month 10 a.m. - noon Where: University Hospital, Room UH 2C224 For: Patients who may need to be listed for, are listed for or have had a lung transplant; also open to their families and support people. Contact: Lisbeth Warner,LMSW Phone: (734) 615-5334 West Michigan Transplant Support Group ACT II University of Michigan & Blodgette Hospital 5635 Haughey Ave. SW Wyoming, MI 49548 Contact: Wayne Carey Phone: (616) 534-7701 Details: Open to All Minnesota Head of the Lakes Transplant Support Group Miller Dwan Hospital 1506 Wallace Ave. Duluth, MN 55812 Contact: Tom Klenz Phone: (218) 728-4837 Details: Open to All Heart/Lung Support Group University of Minnesota Hospital Box 181 Minneapolis, MN 55455 Contact: Beverly Thompson Phone: (612) 626-5796 Details: Heart Heart/Lung Lung Organ Transplant Support Group Central Minnesota Group Health Plan 1245 15th St. North St. Cloud, MN 56303 Contact: Annette Jopp Phone: (612) 252-9893 -or- Contact: Sandy Garrity Phone: (612) 252-7745 -or- Contact: Doris Gohman Phone: (612) 743-2003 Details: Open to the Public Second Chance For Life Foundation University of Minnesota 4511 Westwood Ln. Golden Valley, MN 55416 Contact: Cal Stoll, Executive Director Phone: (612) 374-1821 Details: Heart Heart/Lung TROM (Transplant Recipients Organization of Minnesota) 1965 Tatum St. Roseville, MN 55113 Contact: Chuck White Phone: (612) 647-9766 Details: Open to All Mississippi TRIO New Beginning (a chapter of TRIO) Methodist Hospital P.O. Box 16509 Hattiesburg, MS 39404-6509 Contact: Rev. Roger Flowers Phone: (601) 268-8000 Details: Open to All Missouri Lung Transplant Support Group Barnes-Jewish Hospital St. Louis, MO When: Group Meets the first and third Wednesday of each month at 11:30 a.m. Where: Barnes-Jewish Hospital Contact: Rebecca Phone: (314) 362-6127 Details: Support group sponsored by Barnes-Jewish Hospital to provide education and support for pre- and post- transplant patients, their families and caregivers. Lung Transplant Support Group St. Louis Children's Hospital St. Louis, MO When: Bi-monthly or monthly (based on need) Parents and kids meet separately but at the same time Where: One Children's Place St. Louis, MO 63110 Contact: Martha Markovitz, MSW (parents) Contact: Kimberly Mann, CLS (pediatric patients) Phone: (314) 454-6068 Email: markovitz_m@kids.wustl.edu Details: Primarily comprised of parents and children relocated to St. Louis for transplantation. All stages of transplant process are included. Before and After Support Group When: Monthly meetings are held on the 2nd Monday, 6-7 p.m. Where: Hammons Heart Institute Multipurpose Room 1235 E Cherokee Springfield, MO Contact: Jim Evans, President Contact: Judy Mondy, Newsletter Editor Phone: (417) 887-7981 Email: jmbransrv@aol.com Details: This group is open to all persons who are on a transplant list, who have been transplanted, or who are waiting to be placed on a transplant list and their support persons. Research Transplant Support Group Research Medical Center 6400 Prospect St. 328 Kansas City, MO 64132 Contact: John Park, Chairperson Contact: Karen Vandeputte, RN, CCTC Contact: Terry Bloomer, RN, CCTC Phone: (816) 822-8257 Montana The Big Sky Transplant Support Group Deaconess Medical Center 18 30th St. West Billings, MT 59102 Contact: Bob Yurick Phone: (406) 656-4874 Details: Open to All Nebraska Nebraska Heart/Lung Transplant Support Group 1600 South 48th Lincoln, NE 68506 Contact: Janet Essman Phone: (402) 483-3286 Heart/Lung Patients and Families New Hearts Inc. 6609 South 109th St. Omaha, NE 68137 Contact: Shirley Kramer Phone: (402) 339-8946 Details: Open to All Organ Transplant Support Group University of Nebraska Medical Center 600 South 42nd St. Omaha, NE 68198-1130 Contact: Jean Tomasek, ACSW Contact: Laura Beaumont, MSW Phone: (402) 559-4672 Organ Transplant Patients Seconds for Life 2223 West 17th St. Grand Island, NE 68803 Contact: Bill Grimes Phone: (308) 384-7894 Details: Open to All New Hamsphire Heart Transplant Association of New England P.O. Box 72 Hampton, NH 03842 Contact: Bob Jellison Phone: (800) 321-4HTA Details: Open to All TRIO New England (a chapter of TRIO) 172 Boston St. Middleton, MA 01949 Marty Smith Director Phone: (508) 777-6050 Fax: (508) 777-0620 Details: Open to All New Jersey Cape Atlantic Support Group When: Meets the fourth Thursday of the month Where: Shore Memorial Hospital's private dining room B Contact: MaryEllen Sammons Phone: (609) 624-0529 South Jersey Organ Transplant Support Group Contact: Lorraine Barger Phone: (609) 881-2726 Details: Please call for meeting dates and locations. Saint Clare's Lung Transplant Support Group St Clare's Hospital - Dover General Campus 400 W Blackwell St Dover, NJ 07801 When: Meets every 6 weeks Where: St Clare's Hospital - Dover General Campus Contact: Jean Wiarda, RN Phone: (973) 989-3128 voicemail #4 Email: jwiarda@saintclares.org Details: Lung transplant candidates & recipients New Mexico TRIO New Mexico (a chapter of TRIO) P.O. Box 37217 Albuquerque, NM 87176 Contact: Jim O'Leary Phone: (505) 898-4172 Details: Open to All New York Heart & Lung Transplant Support Group Columbia Presbyterian Medical Center Social Work Services 622 West 168th St. New York, NY 10032 Contact: Ilene S. Gelman CSW Phone: (212) 305-7600 Details: All Transplants Homecare Management Inc. (HMI) 80 Air Park Drive Ronkonkoma, NY 11779 Contact: Katherine Paykin, CSW Phone: (800) 637-5633 Details: For all Organs but mainly lungs Heart/Lung Transplant Program Participants' Support Group Buffalo General Hospital Department of Social Work 100 High St. Buffalo, NY 14203 Contact: Carolyn Kellogg CSW Phone: (716) 845-2160 Details: Heart Lung Lung Transplant Support Group Columbia Presbyterian Medical Center Social Work Services 622 West 168th St. New York, NY 10032 Contact: Ilene S. Gelman CSW Phone: (212) 305-7600 Details: Heart/Lung Lung Transplant Support Group Montefiore Medical Center Transplant Clinic 111 East 210 St. Bronx, NY 10467 Contact: Frank Linsalato, ACSW Phone: (718) 920-5468 Details: Open to All Transplant Support Group of Upstate New York Inc. 19 Cottonwood Place Albany, NY 12205 Contact: Georgia Ann Lashoff, President and Founder Phone: (518) 869-8518 Details: Open to All TRIO Brooklyn (a chapter of TRIO) 48 Locust Drive Amityville, NY 11701 Contact; Wessie Marbury Phone: (516) 789-3890 Details: Open to All TRIO Long Island (a chapter of TRIO) Box 922 Huntington, NY 11743 Anne Treffeisen (516) 421-3258 -or- Contact: Jeanne Eichhorn Phone: (516) 796-3613 Details: Open to All TRIO Manhattan (a chapter of TRIO) P.O. Box 122 Throggs Neck Station Bronx, NY 10465 Phone: Larraine DePasquale Phone: (718) 597-5619 Details: Open to All TRIO Rockland and Orange (a chapter of TRIO) 28 Jacaruso Dr. Spring Valley, NY 10977 Contact: Sheldon Blumenthal Phone: (914) 352-5099 Details: Open to All TRIO Twin Tiers (a chapter of TRIO) 497 Dunbar Road Windsor, NY 13865 Contact: Harry Carlson Phone: (607) 655-1112 Details: Open to All TRIO West Chester - Putnam Co. (a chapter of TRIO) 16 Clinton Avenue Hastings- On-Hudson, NY 10706 Contact: Dr. Alphonso Sorhaindo Phone: (914) 478-2827 or (718) 430-0883 or (718) 430-0800 Details: Open to All TRIO Western New York (a chapter of TRIO) 40 Pfohl Place Williamsville, NY 14221 Contact: Jan Starks Contat: Betty McNamara Phone: (716) 634-6480/716-632-4226/716-883-0003 Details: Open to All TRIO Central New York (a chapter of TRIO) 5123 Picnic Basket Place Clay, NY 13041 Contact: Paul G. Meigs, President Phone: (315) 699-1920 Details: Open To All Lungs 4 Life Support Group When: Meets the 2nd Tuesday every other month at 7pm Where: Myers Park Presbyterian Church in Charlotte, NC Contact: Carmen Walser (ALA) Phone: (704) 537-5776 Email: Cwalser@lungnc.org Lung Transplant Support Group University of North Carolina Hospitals c/o Department of Social Work Manning Dr. Chapel Hill, NC 27514 Contact: William R. Crowder, CCSW Phone: (919) 966-6341 Details: Lung (Pre- and Post-Transplant) TRIO Eastern Carolina (a chapter of TRIO) 503 Highland Ave. Greenville, NC 27858 Contact: Col. Jesse Hinton Phone: (919) 756-8446 Details: Open to All TRIO Triangle (a chapter of TRIO) P.O. Box 16252 Chapel Hill, NC 27516 Contact: Greg Russell Phone: (919) 676-7604 -or- Contact: Carol Wargo Phone: (919) 387-3656 Details: Open to All North Dakota Transplantation Services Educational Series P.O. Box 1086 Fargo, ND 58107 Contact: Jack Rydell Phone: (701) 234-6715 Details: Open to all Ohio Mid-Ohio TRIO (a chapter of TRIO) 82 New Street Greenwich, OH 44837-1056 Contact: Jerry Shoemaker Phone: (800) 421-7252 or (419) 752-3601 Details: Open to All TRIO Akron-Canton (a chapter of TRIO) 1529 19th St. NE Canton, OH 44714 Contact: Tom Behra Phone: Canton - (216) 453-8214 Phone: Akron - (216) 867-3652 Details: Open to All TRIO Greater Cleveland (a chapter of TRIO) P.O. Box 210053 Cleveland, OH 44121-7053 Contact: Lisa Potocar Phone: (216) 473-8979 Details: Open to All TRIO Mahoning Valley (a chapter of TRIO) P.O. Box 3686 Youngstown, OH 44513 Contact: Don DiVito Phone: (216) 758-4141 Details: Open to All TRIO - Miami Valley (a chapter of TRIO) c/o Life Connection 101 South Main Dayton, OH 45409 Barb Berry Phone: (513) 324-4744 Details: Open to All TRIO Renaissance (a chapter of TRIO) c/o Life Connection 1545 Holland Rd. Ste. C Maumee, OH 43537 Contact: Dr. William Chidester Phone: (419) 882-0048 Contact: Open to All Oklahoma Oklahoma TRIO (a chapter of TRIO) Baptist Medical Center of Oklahoma 3300 NW Expressway Oklahoma City, OK 73112 Contact: Beth Slentz Phone: (405) 949-3944 Details: Open to All Transplant/Dialysis Support Group 1514 South 137 East Ave. Tulsa, OK 74108 Contact: Kim Collins Phone: (918) 234-6227 Details: Open to All Oregon TRIO Portland (a chapter of TRIO) 3922 S.E. 37th Avenue Portland, OR 97202 Contact: Cathy Steen Phone: (503) 775-8083 Details: Open to All Pennsylvania Adams County Support Group When: Meets the first Monday of every month Where: in the Gettysburg Hospitals community room; also holds breakfast meetings once a month, please call above number for information. Contact: Ed Althoff Phone: (717) 337-2256 Cardiac Support Coalition Contact: Evelyn Gonzolaz Phone: (610) 940-9644 Details: Please call for meeting dates and locations. Gift of Life Support Group (Lancaster Area) Contact: Laurie Baltzer Phone: (717) 687-8534 Details: Please call for meeting dates and locations. The Gift of Life Rodin Place, 2000 Hamilton St. Philadelphia, PA 19103 Contact: Dean Spare Phone: (215) 963-0482 x112 Website: http://www.donors1.org/index_flash.html Details: Open to All Golden Tomorrow 1204 LeGrand Street Apartment 5 Berwick, PA 18603-4422 Contact: Matthew Repasky Phone: (717) 752-4093 Lehigh Valley Transplant Support Group (Lehigh Area) Contact; Linda McGovern Phone: (610) 402-8506 Details: Meets the second Tuesday of every month at 7PM at the Lehigh Valley Hospital. Lung Transplant Support Group University of Pennsylvania Medical Center Grd. Rhoads Pavilion 3400 Spruce St. Philadelphia, PA 19104 When: Group Meetings are on the second Tuesday every month from 12:00 - 1:30pm Contact: Jennifer Stone-Wynne, LSW, Lung Transplant Social Worker Phone: (215) 662-2375 -or- v Contact: Megan Carr, CRNP, Lung Transplant Nurse Practitioner Phone: Phone: (215) 662-2375 -or- Contact: Rick LeConey, Second Wind Liaison Phone: (856) 629-0988 Email: emesis@aol.com Details: Lung/ All are welcome. We usually have a good turnout. Multi-Organ Support Team (MOST) When: MOST meets the fourth Wednesday of every month Where: at the Gift of Life Donor Program office. Contact: Susan Pincus, Chair Phone: (215) 963-0482, ext. 117 Notes: A support group addressing the concerns of transplant recipients and their family members. Recent topics have included dental care for transplant recipients, generic drugs, diet and nutrition, cornea transplantation and eye care and physical rehabilitation. In July, August and November outdoor or social events are held in lieu of the regular meeting. NE PA Transplant Support Group (Stroudsburg area) Contact: Howard Kindred Phone: (570) 223-2833 Email: office@nepatsg.org Website: http://www.nepatsg.org Please call for meeting dates and locations. Penn State Transplant Support Group (formerly Central PA Transplant Support Group) When: Meets the second Wednesday of each month Where: Hershey Medical Center in the dining rooms A and B off the cafeteria. Contact: Ann MacLaughlin Phone: (717) 531-6316 Second Chance Heart Support Group Contact: Dick Harbourt, Chairman Phone: (609) 799-1498 Second Chance Heart Support Group (Hahnemann University Hospital Chapter) Contact: Bob Beyer Phone: (856) 662-3104 Second Chance Heart Support Group (Temple University Hospital Chapter) Contact: John Simonet Phone: (215) 612-0426 Second Chance Heart Support Group (University of Pennsylvania Medical Center Chapter) When: Meets the second Tuesday of every month at 11 am Where: HUP Contact: Gerald Cohen Phone: (215) 248-2322 Details: This is their muti organ support meeting. Shenango Valley Area TRIO (a chapter of TRIO) 694 Sherman Ave. Sharon, PA 16146 Contact: Joan McCullough Phone: (412) 342-7119 Details: Open to All Transplants for Life (Reading area) When: Meets the fourth Monday of every month Where: Reading Hospital, call for time and location. Contact: Ken Smith Phone: (610) 777-7000 -or- Contact: Bob Gance Phone: (610) 736-9728 Transplant Awareness Group (Scranton area) Contact: John Johnson Phone: (717) 963-7673 Details: Please call for meeting dates and locations. Transplant Educational Support Group Allegheny General Hospital 320 East North Ave. Pittsburgh, PA 15212 Contact: James Osten, Facilitator Phone: (412) 359-6800 Phone: (412) 487-5656 Details: Heart and Lung (Pre- and Post-Transplant) Transplant Recipients International Organization (TRIO) When: Meets the first Wednesday of every month at 6:30 PM Where: the Gift of Life Office Contact: Elizabeth Rubin Phone: (610) 544-4140 University of Pittsburgh Lung Transplant Support Group 200 Lothrop St. Ste. C-700 Pittsburgh, PA 15213 Contact: Jan D. Manzetti, RN, PhD Phone: (412) 648-9136 Details: All Types of Lung and Heart/Lung Transplants Williamsport Area Transplant Support Group When: Meets second Thursday of each month at 6:30 PM When: the cafeteria of Susquehanna Health Care, Williamsport Hospital Contact: Patrick Kurtz Phone: (570) 368-1251 v -or- Contact: Jim Phlegar Phone: (570) 327-8183 Wyoming Valley Transplant Support Group 202 Hillside Ave. Edwardsville, PA 18704 Contact: Naomi Chopak Phone: (717) 287-5714 Details: Open to All York Area Transplant Support Group When: Meets the third Monday of every month except August at 7:00 PM Apple Hill Medical Center, Suite 193. Contact: Beth Trout-Landen Phone: (717) 851-2052 Details: Open to All Pre- and Post-Transplant Patients Friends and Family Rhode Island Rhode Island Organ Donor Awareness Community P.O. Box 40926 Providence, RI 02940-0926 Contact: Bill Molloy Phone: (401) 944-7272 Details: Open to All TRIO New England (a chapter of TRIO) 172 Boston St. Middleton, MA 01949 Contact: Marty Smith, Director Phone: (508) 777-6050 Fax: (508) 777-0620 Details: Open to All South Carolina The Heart and Lung Exchange Medical University of South Carolina Heart Center 171 Ashley Ave. Charleston, SC 29425 Contact: Carol Jaskunas, LISW Phone: (803) 792-2123 or (803) 792-0590/ Beeper: 1925 Details: Heart Heart/Lung Lung South Dakota Transplant Services of South Dakota 800 East 21st St. P.O. Box 5045 Sioux Falls, SD 57117-0545 Phone: Robin Thompson Contact: (605) 339-7730 Details: says for kidney but worth a look. Tennessse Family Support Group St. Thomas Hospital 4230 Harding Rd. Ste. 100 Nashville, TN 37205 Contact: Christy S. Casillas Phone: (615) 222-6618 Details: Heart Heart/Lung New Heart Society of East Tennessee Vanderbilt Med. Ctr.- Nashville 1336 Scottsbury Circle Knoxville, TN 37919 Contact: Jerry Barnfield Phone: (615) 694-0269 Details: Open to All Support Person(s) Transplant Support Group Department of Veterans Affairs Transplant Center 1310 24th Ave. South Nashville, TN 37212-2637 Contact: Patricia Coffey, LCSW Contact: Katrina Stokes, MSSW Details: Open to All Vanderbilt University Support Group 301 Oxford House 21st Ave. South Nashville, TN 37212 Contact: Janie Webb Phone: (615) 343-7820 Details: Open to All State of Franklin TRIO (a chapter of TRIO) 208 Holston Drive Weber City, VA 24290 Contact: Ben Scott Phone: (703) 386-3705 Details: Open to All Texas American Organ Transplant Association P.O. Box 277 Missouri City, TX 77459 Contact: Ellen Woodall Phone: )713) 261-2682 Open to All Baylor Heart and Lung Transplant Support Group Baylor University Medical Center 3500 Gaston Ave. Dallas, TX 75246 Contact: Monica Tillett Phone: (214) 820-3515 Details: Heart Lung Heart/Lung Genesis UTHSCSA University Hospital 7703 Floyd Curl Dr. San Antonio, TX 78284-7842 Contact: Denise Gilbert, LMSW-ACP Phone: (210) 616-2769 Details: Open to All Heart to Heart (Families of CHD/pediatric cardiac/heart transplant) P.O. Box 595 Colleyville, TX 76034 Contact: Sally Pearson Phone: (888) 475-2687 Phone: (817) 267-0076 Phone: (214) 336-4644 Website: http://www.heart-to-heart-tx.org Heart Heart/Lung New Hearts and Lungs Baylor University Medical Center 3600 Gaston Ave. Ste. 404 Dallas, TX 75246 Contact: Sam Ricks Phone: (972) 690-6204 Details: Heart Lung Heart/Lung(Pre- and Post-Transplant) Second Chance 217 Nolana Ste. 13 McAllen, TX 78504 Contact: Hilda L. Solis, RN, MSN Phone: (210) 630-0884 Details: Open to All The Texas Medical Center Pre-/Post-Lung Transplant Support Group Methodist Hospital 6560 Fannin Houston, TX 77030 Contact: Janine Hyden, RN Phone: (713) 790-2501 -or- Contact: Carrie Martin Phone: (713) 790-3116 Details: Lung Transplant Support Group Bee County Regional Medical Center c/o Education Department Beeville, TX 78102 Contact: Bill Watkins Phone: (512) 358-5431 Details: Open to All Transplants for Children/ Grief Support Group/ Teen Support Group University Hospital 6800 Park Ten Blvd. Ste. 115-N San Antonio, TX 78213 Contact: Bernadette F. Hassan, MS, MA Phone: (210) 736-1669 Details: Open to All TRIO El Paso (a chapter of TRIO) 11398 Rising Star Court El Paso, TX 79936 Contact: Mike Giglio, President Phone: (915) 543-5766 Details: Open to All TRIO Texas Gulf Coast (Galveston-Houston) (a chapter of TRIO) UTMB John Sealy Towers Room 5.110 301 University Blvd. Galveston, TX 77555-0262 Contact: Janet Mize, RN Phone: (409) 772-5709 Details: Open to All TRIO Waco (a chapter of TRIO) 3500 Meyers Lane #49 Waco, TX 76705 Contact: Ernest Gilbert Phone: (817) 799-6742 Details: Open to All Tyler Support Group 807 East 1st Tyler, TX 75711 Contact: Carolyn Wiley, CMA Phone: (903) 595-5486 Details: Open to All Valley Transplant Support Association P.O. Box 720-755 McAllen, TX 78504 Contact: Debbie Pierce, LVN Phone: (512) 630-0884 Details: Open to All Utah No lung transplant support grps so try: Heart Transplant Support Group LDS Hospital 8th Ave. C St. Salt Lake City, UT 84143 Contact; Brenda S. Ross, LCSW Phone: (801) 321-1021 Details: Heart Pediatric Heart Transplant Support Group Primary Children's Medical Ctr. 100 North Medical Dr. Salt Lake City, UT 84113 Contact: Valerie Stephens, LCSW Phone: (801) 588-2549 Details: Heart Utah Heart Transplant Support Group University of Utah and Affiliated Hospitals-Cardiac Transplant Program 50 North Medical Dr. Salt Lake City, UT 84132 Contact: Geri Etringer, LCSW Phone: (800) 824-2073 Details: Heart Virginia TRIO New England (a chapter of TRIO) 172 Boston St. Middleton, MA 01949 Marty Smith, Director Phone: (508) 777-6050 Fax: (508) 777-0620 Details: Open to All. PALS (Pulmonary Achievers Live Successfully) Rockingham Memorial Hospital Cardiopulmonary Services 235 Cantrell Avenue Harrisonburg, VA 22801 Culpeper Transplant Group 207 Sunset Ln. Culpeper, VA 22701 Contact: Sheila or Lanny Horton Phone: (540) 825-4815 Details: Open to All Heart/Lung Transplant Support Group University of Virginia Medical Center Box 191 Charlottesville, VA 22908 Contact: Bill Potts, MSW, CSAC Phone: (804) 243-6150 Details: Heart/Lung Lung Support Group Medical College of VA Hospitals Box 104 MCV Station Richmond, VA 23298 Contact: Letha Moore-Jones, MSW Phone: (804) 828-2558 Details: Lung Heart/Lung (Pre and Post-Transplant) Nation's Capital Area TRIO (a chapter of TRIO) P.O. Box 7633 Arlington, VA 22207 Contact: Jane Leon Phone: (703) 920-8746 Details: Open to All Lynchburg General 215 Chadwick Dr. Lynchburg, VA 24502 Contact: Garland Mapp Phone: (804) 385-6282 Website: http://www.lynchburg.net/tlc/index.htm Details: Open to All Transplant Group and Friends Box 2472 Grundy, VA 24614 Contact: Wilma Deel Phone: (540) 531-8140 Details: Open to All Transplant Group of Tidewater Sentara Norfolk General Hospital 600 Gresham Dr. 5th Floor Norfolk, VA 23507 Contact; Nancy Hurst Phone: (804) 628-2831 Details: Open to All Transplant Support Group 640 Gypsy Ave. Staunson, VA 24401 Contact: Debbie Sutcliffe Phone: (703) 885-5011 Details: Open to All Transplant Support Group Fairfax Hospital 3300 Gallows Rd. Falls Church, VA 22046 Contact: Jane Harrison Phone: (703) 698-3203 Details: Heart Lung Liver Transplants United of SW Virginia 903 Camelot Dr. #2 Salem, VA 24153 Contact: Pam and Carl Lucas Sr. Phone: (540) 342-4774 Details: Open to All Winchester Transplant Support Group 722 Devils Backbone Overlook Stephenson, VA 22656 Contact: Carol Bell Phone: (703) 722-6489 Details: Open to All Washington University of Washington Lung Transplant Support Group Attention: Angela Wagner PO Box 7031 Covington, WA 98042-0040 When: First Tuesday of each Month Where: UWMC in 1st floor cafe meeting rooms Contact: June Richmond Phone: (253) 639-5076 Email: junerichmond@earthlink.net Details: Pre/post LUNG Transplant and support persons Inland Northwest Thoracic Organ Transplant Program West 105 8th Ave. Ste. 360 Spokane, WA 99204 Contact: Phyllis McFarland Phone: (509) 623-7575 Details: Heart Heart/Lung Lung TRIO Cascade (a chapter of TRIO) 815 NW 120th St. Seattle, WA 98117 Contact:Irwin Etter Phone: (206) 364-0813 Details: Open to All West Virginia Renal Transplant Group West VA Univ. Hosp. Health Science Center Morgantown, WV 26506 v Contact: Matt Goldinger Phone: (304) 293-3342 Details: Kidney, Open to All Tri-State Transplant Support Group 5467 Shawnee Dr. Huntington, WV 25705 Contact: Dorcie Steinbrecher Phone: (614) 886-8352 -or- Contact: Donna Bias Phone: 304-736-7575 Details: Open To All(Pre- and Post-Transplant) Organ Transplant Support Group Charleston Area Medical Center General Division 501 Morris Street Charleston, WV 25301 Contact: Renal Transplant Office Phone: 1 (800) 346-6233 0r (304) 348-7823 Details: Open to all pre- and post-transplant patients Wisconsin The Heart and Lung Transplant Support Group When: Third Wednesday of each month, 6:00-8:00 PM Where: Froedtert East-Health Education Center (Room 232) Contact: Kristin Strother, MSW Phone: (414) 259-3055 The Heart and Lung Transplant Support Group Medical College of, WIsconsin When: Second Tuesday of each month, 12:30-2:00 PM. Where: Location varies. v Contact: Jane Janusz, RN Phone: (414) 257-6987 Central, WIsconsin Area Second Chance for Life Marshfield Clinic LK-2 1000 North Oak Ave. Marshfield, WI 54449 Contact: Leah Breu, RN Phone: (715) 387-5308 Details: Open to All Heart and Lung Transplant Support Group University of, WIsconsin Hospitals and Clinics 600 Highland Ave. Rm H4/370 Madison, WI 53792 Contact: Bob Bernstein Phone: (608) 263-7832 Details: Heart/Lung |
![]()
|
|
|
|
DISCLAIMER:
The information provided in this site is for educational purposes only, and it is
not intended nor implied to be a substitute for professional medical advice.
Always consult your own physician or healthcare provider with any questions you may
have regarding a medical condition.
For comments, suggestions or contributions, please contact
.
Copyright © 1996-2008, Second Wind Lung Transplant Association, Inc. All rights reserved.
|