Caregiver Links
Resources for families (The following organizations offer help to parents and caregivers of children and/or adults with various chronic conditions.)
AARP Home Alone Alliance
(https://www.aarp.org/ppi/initiatives/home-alone-alliance/)
Series of free videos to support family caregivers with medical & nursing procedures.
Caregivers Action network
1130 Connecticut Ave NW, Suite 300
Washington, DC 20036
Phone: (202) 454-3970
Contact by email: info@cargiveraction.org
Visit their website: www.caregiveraction.org
CaringBridge
1995 Rahn Cliff Court, Suite 200
Eagan, MN 55122
Phone: (651) 452-7940
Contact by email: cegeberg@caringbridge.org
Visit their website: www.caringbridge.org
COLLEGE EXPLORERS
This group provided College Education Guides to help job seekers, professionals, and students understand the changing landscapes of these education programs and their impact on careers and employment. You can view the guides here:
Cheri Shallenberger
Senior Editor – College Explorer
Phone: (816) 343-4905
Edumed: The Caregiver’s Handbook
Visit their website: https://www.edumed.org/resources/caregivers-online-handbook/
Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA 94104
Phone: (888) 835-5669 (Toll-free)
Contact by email: info@caregiver.org
Visit their website: www.caregiver.org
KidTrans
Contact by email: shellyd@mcn.net
Visit their website: www.kidtrans.org
Medicare Advantage
Use this link to learn more about Medicare (for US families) and the various available options. (https://www.payingforseniorcare.com/medicare-advantage)
Pulmonary Hypertension Association
801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Phone: (301) 565-3004
Fax: (301) 565-3994
Visit their website: www.phassociation.org
Transplant Cafe
Phone: (323) 863-5766
Email Nelson Freytes: transplantcafe@gmail.com
TransPlant Recipients International Organization (TRIO)
phone: 800-TRIO-386
e-mail: info@trioweb.org
website: https://www.trioweb.org/
