Caregiver Links
Resources for families (The following organizations offer help to parents and caregivers of children and/or adults with various chronic conditions.
AARP Home Alone Alliance
(https://www.aarp.org/ppi/initiatives/home-alone-alliance/)
Series of free videos to support family caregivers with medical & nursing procedures.
Caregivers Action network
1130 Connecticut Ave NW, Suite 300
Washington, DC 20036
Phone: (202) 454-3970
Contact by email: info@cargiveraction.org
Visit their website: www.caregiveraction.org
CaringBridge
1995 Rahn Cliff Court, Suite 200
Eagan, MN 55122
Phone: (651) 452-7940
Contact by email: cegeberg@caringbridge.org
Visit their website: www.caringbridge.org
Edumed: The Caregiver’s Handbook
Visit their website: https://www.edumed.org/resources/caregivers-online-handbook/
Family Caregiver Alliance
690 Market Street, Suite 600
San Francisco, CA 94104
Phone: (888) 835-5669 (Toll-free)
Contact by email: info@caregiver.org
Visit their website: www.caregiver.org
KidTrans
Contact by email: shellyd@mcn.net
Visit their website: www.kidtrans.org
Medicare Advantage
Use this link to learn more about Medicare (for US families) and the various available options. (https://www.payingforseniorcare.com/medicare-advantage)
Pulmonary Hypertension Association
801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Phone: (301) 565-3004
Fax: (301) 565-3994
Visit their website: www.phassociation.org
Transplant Cafe
Phone: (323) 863-5766
Email Nelson Freytes: transplantcafe@gmail.com
TransPlant Recipients International Organization (TRIO)
phone: 800-TRIO-386
e-mail: info@trioweb.org
website: https://www.trioweb.org/
