Toll Free Help Line: (888) 855-9463
Second Wind Lung Transplant Association

Caregiver Links

Resources for families (The following organizations offer help to parents and caregivers of children and/or adults with various chronic conditions.

AARP Home Alone Alliance

(https://www.aarp.org/ppi/initiatives/home-alone-alliance/)

Series of free videos to support family caregivers with medical & nursing procedures.

 

Caregivers Action network

1130 Connecticut Ave NW, Suite 300
Washington, DC  20036
Phone:  (202) 454-3970
Contact by email:  info@cargiveraction.org
Visit their website:  www.caregiveraction.org

CaringBridge

1995 Rahn Cliff Court, Suite 200
Eagan, MN 55122
Phone:  (651) 452-7940
Contact by email:  cegeberg@caringbridge.org
Visit their website: www.caringbridge.org

Edumed: The Caregiver’s Handbook

Visit their website:  https://www.edumed.org/resources/caregivers-online-handbook/

Family Caregiver Alliance

690 Market Street, Suite 600
San Francisco, CA 94104
Phone:  (888) 835-5669 (Toll-free)
Contact by email:  info@caregiver.org
Visit their website:  www.caregiver.org

KidTrans

Contact by email:  shellyd@mcn.net
Visit their website:  www.kidtrans.org

Medicare Advantage

Use this link to learn more about Medicare (for US families) and the various available options. (https://www.payingforseniorcare.com/medicare-advantage)

Pulmonary Hypertension Association

801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Phone:  (301) 565-3004
Fax: (301) 565-3994
Visit their website: www.phassociation.org

Transplant Cafe

Phone:  (323) 863-5766
Email Nelson Freytes: transplantcafe@gmail.com

TransPlant Recipients International Organization (TRIO)

phone: 800-TRIO-386
e-mail: info@trioweb.org
website: https://www.trioweb.org/

TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Through the TRIO Headquarters and a network of chapters, TRIO serves its members in the areas of: Awareness, Support, Education, and Advocacy.