Toll Free Help Line: (888) 855-9463
Second Wind Lung Transplant Association

Caregiver Links

Resources for families (The following organizations offer help to parents and caregivers of children and/or adults with various chronic conditions.)

 

AARP Home Alone Alliance

(https://www.aarp.org/ppi/initiatives/home-alone-alliance/)

Series of free videos to support family caregivers with medical & nursing procedures.

Caregivers Action network

1130 Connecticut Ave NW, Suite 300
Washington, DC  20036
Phone:  (202) 454-3970
Contact by email:  info@cargiveraction.org
Visit their website:  www.caregiveraction.org

CaringBridge

1995 Rahn Cliff Court, Suite 200
Eagan, MN 55122
Phone:  (651) 452-7940
Contact by email:  cegeberg@caringbridge.org
Visit their website: www.caringbridge.org

COLLEGE EXPLORERS 

This group provided College Education Guides to help job seekers, professionals, and students understand the changing landscapes of these education programs and their impact on careers and employment. You can view the guides here:
– https://www.collegedegreesonline.com/
– https://www.teachingdegrees.com/

Cheri Shallenberger
Senior Editor – College Explorer
Phone: (816) 343-4905

Edumed: The Caregiver’s Handbook

Visit their website:  https://www.edumed.org/resources/caregivers-online-handbook/

Family Caregiver Alliance

690 Market Street, Suite 600
San Francisco, CA 94104
Phone:  (888) 835-5669 (Toll-free)
Contact by email:  info@caregiver.org
Visit their website:  www.caregiver.org

KidTrans

Contact by email:  shellyd@mcn.net
Visit their website:  www.kidtrans.org

Medicare Advantage

Use this link to learn more about Medicare (for US families) and the various available options. (https://www.payingforseniorcare.com/medicare-advantage)

Pulmonary Hypertension Association

801 Roeder Road, Suite 1000
Silver Spring, MD 20910
Phone:  (301) 565-3004
Fax: (301) 565-3994
Visit their website: www.phassociation.org

Transplant Cafe

Phone:  (323) 863-5766
Email Nelson Freytes: transplantcafe@gmail.com

TransPlant Recipients International Organization (TRIO)

phone: 800-TRIO-386
e-mail: info@trioweb.org
website: https://www.trioweb.org/

TRIO is an independent, not-for-profit, international organization committed to improving the quality of life of transplant candidates, recipients, their families and the families of organ and tissue donors.
Through the TRIO Headquarters and a network of chapters, TRIO serves its members in the areas of: Awareness, Support, Education, and Advocacy.