AMERICAN ORGAN TRANSPLANT ASSOCIATION (AOTA)
P.O. Box 277
Missouri City, Texas 77459
A private, nonprofit group that provides many services to transplant recipients and their families. These services include airfare and bus tickets and advice on fund-raising and setting up trust funds. AOTA publishes a newsletter for its members. Patients interested in AOTA’s services must be referred by their physician.
AMERICAN CENTER FOR TRANSPLANT RESOURCES (ACT)
1512 Arboretum Dr.
Chapel Hill, NC 27514
Contact: Chuck Hutson, Executive Director
(919) 932-7847 (Fax)
helpline; state and federal resources, insurance issues, disability laws, vocational rehabilitation
Burroughs Welcome, the manufacturer of Imuran and Zorvarax, supplies these medications at no cost for indigent persons on a short-term (90 day) basis. Medications are shipped to the physician treating the patient. A patient’s physician must call the above number to initiate the application process.
CHILDREN’S ORGAN TRANSPLANT ASSOCIATION (COTA)
2501 COTA Drive
Bloomington, Indiana 47403
A nonprofit agency raising funds for individuals and families to help with transplant and related expenses. The association works with adults and children. All funds raised go to the individual. No administrative fees are collected for their services.
N.O.R.D. / SANDOZ DRUG SHARE PROGRAM
Sandoz Pharmaceutical Corporation, the manufacturer of cyclosporine, underwrites a program administered by N.O.R.D. If you qualify for financial assistance, N.O.R.D. will issue a voucher to cover part of your medication for a maximum of one year.
ORGAN TRANSPLANT FOUNDATION OF CENTRAL FLORIDA
400 East Cemoran Boulevard, Suite 214
Casselberry, Florida 329707
Provides community education and awareness about organ and tissue donation through speakers and information programs. Works with pre and post transplant patients in a limited geographic region. Provides limited funds in emergencies for costs such as rent, utilities, and transportation.
NATIONAL FOUNDATION FOR TRANSPLANTS
1027 South Yates Road
Memphis, Tennessee 38119
Helps transplant candidates and recipients nationwide in obtaining transplants and follow-up care and provides essential support and referral services. Provides clients with fund-raising expertise and materials and assures that funds raised are properly dispensed. Limited emergency grants are available for medications.
PHARMACEUTICAL MANUFACTURERS ASSOCIATION
Transplant professionals must request the “Directory of Prescription Drug Indigent Programs.” This directory lists more than 55 prescription drug programs that member companies provide to indigent patients. The programs are listed alphabetically by company. Each program entry describes who is eligible, how to request assistance and what prescription medicines are covered. For a Free copy, professionals must write to PMA, 1100 Fifteenth Street, NW, Washington, D.C. 20005.
National Transplant Assistance Fund & Catastrophic Injury Program (NTAF)
150 N. Radnor Chester Road, Suite F-120
Radnor, PA. 19087
NTAF is a 501(c)(3) nonprofit charitable organization that helps transplant patients and individuals living with catastrophic injury pay for life-sustaining but uninsured medical care by providing fundraising guidance for community fundraising campaigns, with fiscal accountability, patient resources and support, and financial assistance. NTAF has 25 years experience empowering patients and families in fundraising— helping to raise more than $50 million for critical medical care.
THE NIELSEN TRANSPLANT FOUNDATION
580 West Eighth Street
Jacksonville, Florida 32209
A regional group that provides assistance to a five-county area in Florida: Duvall, Baker, St. John, Nassau, and Clay. Promotes education and organ donor awareness. Limited grant funds available.
THE TRANSPLANT FOUNDATION
8002 Discovery Drive, Suite 310
Richmond, Virginia 23229
A national nonprofit volunteer organization providing grants to transplant recipients to offset the costs of immunosuppressive medications. The number of individuals who can receive assistance and the amount of the grants are decided by the total contributions received each year. The organization also acts as a resource referral and an advocate for the rights of transplant recipients.
STATE PHARMACEUTICAL ASSISTANCE PROGRAMS
The following states have programs with specific financial eligibility guidelines that offer assistance with outpatient medications to senior citizens and persons with disabilities:
Connecticut – CONN PACE Program – Connecticut Pharmaceutical Assistance
Contract to the Elderly and Disabled – 1-800-423-5026
Delaware – The Nemours Health Clinic Program
New Castle County – 302-429-8050
Kent and Sissex County – 1-800-292-9538
Illinois – Pharmaceutical Assistance Program – 1-800-624-2459 or 217-524-0435
Maine – Elderly Low-Cost Drug Program – 1-800-773-7894
Maryland – Pharmacy Assistance Program – 1-800-492-1974
New Jersey – PAAD Program – Pharmaceutical Assistance to the Aged and Disabled – 1-800-792-9745
New York – EPIC Program – 1-800-332-3742
Pennsylvania – PACE Program – Pharmaceutical Assistance Contract for the Elderly – 1-800-225-7223
THE BENEFITS OF GOVBENEFITS.GOV
If you need some financial help, try GovBenefits.gov. Hundreds of government programs are listed. You can browse by category, state or even popularity. Don’t know what to look for? With a simple questionnaire, you may find multiple benefits for which you qualify. Alternatively, select an event in your life to see what is available. You may well be entitled to benefits.
Click here for More Information: GovBenefits.gov